Cooper, 10, Aicardi-Goutieres Syndrome. I wish to go to the snow for the first time to throw snowballs
Cooper
Just before he turned 2, crusader Cooper with his gorgeous smile was diagnosed with Aicardi-Goutieres Syndrome, a very rare neurological disease resulting in profound motor and speech delays. Working at first with trial medications and then putting a lot of hard work into physical and speech therapy, Sydney-based Cooper is about to turn 10 in July!
Cooper's wish came true in September 2022.
"Cooper’s little face when we first drove up and he saw the snow was priceless. He was so excited. All he wanted to do was touch it. He threw snowballs, be built snowmen, he threw off the gloves so he could get right in there - yes cold fingers!" - Kyrsten, Cooper's mum